Archive for the 'HIT' Category

In the Works: New Patient Rights

Christine Bechtel

“When it comes to health care, information is power. When patients have their lab results, they are more likely to ask the right questions, make better decisions and receive better care.”
~ HHS Secretary Kathleen Sebelius

Patients and families may soon have a great opportunity to have more control over ­ and make improvements in ­ the health care they receive. Under a proposed rule released by the U.S. Department of Health and Human Services today, patients will be able to receive test results reports directly from labs upon request.

This is great news: it will help patients access their information when they want and need to, ensure that their medical records are updated and accurate, and support them in being active and informed decision-makers in their care.

Does this take doctors out of the equation? Absolutely not. Doctors and other providers always have been and will continue to be essential in helping patients understand and interpret their test results. This rule won’t change that.

Here’s what it will change: Right now, many states have laws that prohibit patients and families from getting their test results directly from the labs; they must go through doctors’ offices instead. And unfortunately, there are still millions of patients who do not receive their lab results, leaving them without the information that they need. That, too, will change.

The new rule will allow patients to have a more hands-on role in their health care decisions and be able to seek the medical attention that they need – and that’s a huge step forward for better care.

Learn more in our statement.

What, No Tiara?

Christine Bechtel

Christine Bechtel

Recently, a reporter conducted an analysis of the people considered to be “the most powerful” in the field of health information technology (IT).

Focusing on the Health IT Policy Committee (a federal advisory body that provides input to key federal agencies with jurisdiction over health IT), the reporter conducted an analysis of stakeholders serving on various workgroups with the capacity to influence public policy.  His generous conclusion is that based on the number of workgroups and other subjective factors – including “forceful will” – that the most powerful person is…me.

My parents couldn’t be happier.  My colleagues won’t let me live it down.

I’m more than a little embarrassed, since I can think of about a thousand other people in Washington more powerful than I am – including the hard-working federal agency staff that actually set and oversee the implementation of HIT policy and initiatives.

But to me, the most powerful people are actually those professionals in the field who are making a real difference every day in the lives of patients and their families.

They are living examples of how this can be done – that electronic health records can be used in a meaningful way right now to truly benefit not just doctors and health insurance companies, but patients and families themselves.

Physicians like Ted Eytan, who are using their medical training and their deep rooted personal beliefs that care really is about patients to help health systems like Group Health and Kaiser Permanente re-engineer the way they use information to provide care that is better, safer and more patient-centered.

Professionals like Micki Tripathi, who are leading statewide efforts to build systems and relationships that help doctors talk to each other electronically (through information exchange) and thereby coordinate care for patients who need it.

Institutions like the Department of Veterans Affairs, which is making it possible for veterans and their families to download their own health information electronically – so they don’t have to tote reams of paper from doctor to doctor in an attempt to make sure their care teams have the information they need to provide the best care they can.

These outstanding people and organizations are changing health care for patients and their families every day.  They do what they do to help people like Susan Crowson.  Susan was a caregiver for her father, “Pop,” for years.  She created Excel spreadsheets to track his complex care.  She alone bore the burden of getting doctors to share important information.  When she took her dad for lab tests every two months, Susan was the one who had to make sure all Pop’s doctors got the test results — or it didn’t happen.  In today’s technologically advanced world, this is just unacceptable.

At the end of the day, I believe that power in this world is about making a meaningful difference in people’s lives, and these are just a few of the most powerful people in my book.  And more “power” to them!

Great News: ‘Meaningful Use’ Rule Released Today!

Christine Bechtel

Christine Bechtel

We’ve said it before and you know it’s true: health information technology is for better health outcomes, not just better technology. And the new regulations released by the Obama administration show that they get it.

I was thrilled to watch HHS Secretary Sebelius, who recently spoke at the National Partnership’s annual luncheon, make the announcement this morning at HHS. These new regulations will mean that those health providers who take federal health IT dollars will be held accountable for improving the care you receive – by using health IT in a meaningful way.

An end is finally in sight for the days when doctors have to sift through incomplete and incomprehensible hand-written medical records – when patients must tote test results from doctor to doctor – and when family caregivers spend endless time trying to coordinate medications and treatments for those who can’t do so for themselves.

And we say ‘good riddance.’ The regulations are strong, sensible, patient-centered – and just what the nation needs as we reform our health care system.

But let’s be clear: our work on the meaningful use of health IT isn’t done. As we move forward, we need to make sure the regulations are strengthened so providers who violate privacy laws are ineligible for federal IT dollars, and so providers are required to give all patients timely access to their health information.

So, for today, let’s celebrate. Today’s action helps put in place the foundation for a health care system that works for patients and families – and we will all benefit as private and secure electronic health records become the norm in the United States. And tomorrow, we forge ahead. Stay tuned….

Now the Hard Work Begins…

Debra Ness

Debra Ness

That’s right. Health reform may officially be law, but now the hard work of fixing our health care system begins.

And we’re excited to launch a major new initiative, the Campaign for Better Care, to ensure that older adults, and all Americans, can realize the promise of reform.

The Campaign for Better Care — led by the National Partnership, Community Catalyst and the National Health Law Program, with funding from The Atlantic Philanthropies — begins the critical work of convincing policymakers to implement reform in ways that give people the comprehensive, coordinated health care they need -­- especially older adults and individuals with multiple chronic conditions, and those who are sickest and most vulnerable.

This issue affects so many of us. In communities across the country, patients cope with extraordinary pressures from a health care system that doesn’t coordinate their care. And family caregivers — including wives, daughters, husbands, sisters, grandchildren, other relatives and friends — struggle to help, often with little or no support.

Campaign for Better Care

Campaign for Better Care

It doesn’t have to be this way. Doctors should work together as a team, medical records should be at our fingertips, and patients and families should not be left to fend for themselves. We get it. There is a better way. And it’s what the Campaign for Better Care is all about.

Check out the new campaign website at www.CampaignforBetterCare.org where you can learn more, read compelling personal stories, and even become part of the “face” of the campaign, by adding your photo to an interactive photo slideshow — filled with photos and stories shared by real people just like you. We also encourage you to follow and interact with us on Facebook and Twitter .

We have a lot planned in the coming weeks, and hope we can count on you to help us raise awareness about the urgent need for better care.

In particular, we’re launching an advertising blitz on Capitol Hill next week to welcome Congress back from recess and remind them that now the hard work begins! We’ll post a copy of the full-page newspaper ad on the day it runs, and we’d appreciate your help spreading the word. We need our elected leaders to take notice!

In the meantime, take a look at our new site and photo slideshow, and send us your thoughts and ideas. We’d love to hear from you.